Wednesday, February 22, 2012

Trigeminal Neuralgia: Say that 5 times fast

The last three days have been pretty scary. I have a new symptom that I've never experienced before. When I eat the roof of my mouth and back of my throat feels like it is on fire. Because of this, I haven't eaten much the last three days. The pain is so bad that it brings me to tears. I mean it's intense pain! I contemplated going to the ER last night, but with no health insurance at the moment, and going down to part time at work, the idea of a huge emergency bill turned me off.

So instead of going to the doctor I did the next best thing and started searching the internet. It seems to me that I am experiencing what is called Trigeminal Neuralgia. Apparently though only 4% of people with MS experience this symptom. Sucks that it had to happen me. Hopefully it goes away for good, but from other things I have read it usually comes and goes. I'm also not a doctor, so maybe I'm wrong, but from what people are saying it is the exact pain I am feeling.

That's how I have been feeling physically, emotionally is a whole another story. I've been feeling really depressed lately. I think that things have just gotten harder for me recently and it's taking a toll on my optimism. I've given up on a lot because of this stupid disease and I hate it. I really have things that I need to work on, and hopefully my MS will allow me to do that.

Also, I just wanted to share that while I was messing around, looking at some other blogs and MS articles, I came across this thing called the Spoon theory. It's basically a story explaining what it feels like to have an "invisible disease". I think that it is helpful in understanding diseases that are not always easy to understand and it is worth reading.

1 comment:

  1. That's for sharing that link to the Spoon Theory. That's a pretty cool way to explain things and I think it could be a helpful analogy to use myself!

    I so hope that the Trigeminal Neuralgia is temporary, I know how it feels to have strange neuropathies just randomly pop up like that and it sucks. I'm thinking about you and hoping you feel better soon and that you can get to the bottom of this new symptom!