So the good news is that my medicine finally came today! It's a shot for five days of a hormone that will make my body produce more of it's own natural steroid. In turn, hopefully making me feel like a new woman! Fingers are crossed.
Another good thing about the medicine is that it was completely free for me. It has been so stressful with all of these medical bills rolling in everyday. Last week, when I checked the mail, I said something to Vince about how there was no mail and I couldn't believe it was a day without medical bills! Then about an hour later we heard the mail come, (the mail man must of been running late) and of course there were bills! I guess I spoke too soon.
Besides all of the bills, the other bad news is just that I haven't really been doing much better. I think that I am adjusting to feeling this way though, which makes it seem that I am doing a little better. I'm finding ways to do things for myself without having to bother Vince, or my mom to help me. It's not really an adjustment that I wanted to make, but c'est la vie.
I've started using a cane, which has been an experience. I began using a cane my mom had in the basement. It was my great grandfathers. I jazzed it up with a little bling I picked up from Walmart. I just wanted to try it out before I bought one. Well it turns out that I really like using the cane. It helps me keep my balance, and helps my fatigue. So my mom bought me a fancy one. It's a really pretty purple color with a really soft handle. The other cane had a wooden handle, and it hurt my wrist when I used it for a long period of time. So I was really excited about the handle.
I have gotten some looks from people when I use my cane, mostly kids though. It doesn't really bother me. The best part about my cane though, is that people move out of my way! I love that. But of course as much as I like the assistance of my cane right now, I don't want to be using it forever! I'll be glad to put it in the closet!
Lastly, I really need to shout out to my parents and Vince's parents for all of their love and support through all of this. They have all been awesome. I love you all very much!
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ReplyDeleteSo nice seeing you and your mom today at the lunchon, I look forward to reading your blog, you seem to have a good attitude toward everything. That is Great. Stacy
ReplyDeleteHi Meg,
ReplyDeleteI just read almost all your posts and want to thank you for them. The hospitals, the crying, the treatments, the crying, the need (and sweet love/appreciation) of mom and boyfriend, the crying, the depression, the creeping heavy don't-touch-me numbness and torso squeezes.... I've had a small taste of all of it since MS began in me at 25 (I'm 41 now), but at your age I didn't have the dignity or peace of mind to write so thoughtfully about it. Despite how lucky I turned out to be with RRMS, I freaked out with the diagnosis and during the few toe-to-neck bouts of numbness/shocks I had. Depression and mood swings are still very challenging, and I felt both understood and understanding reading your experience of some of these things. What you're doing for young people here is wonderful.... I went to one MS meeting and never went back because I was so young and ambulatory - felt like I didn't "deserve" to be there, and that left me feeling very alone for a long time. Please keep posting. You are an inspiration.
Warmly,
Jen