Well I'm a little over due for an update. It has been a difficult couple of weeks to say the least. I have been to a bunch of appointments and I have two more next week.
I haven't really been doing any better physically. I'm still having weakness, mostly on my left side. I am also having a hard time with my throat and neck. My chin has been numb for the last week as well. I guess I am doing worse really. Luckily I have my long awaited appointment with the new neurologist on Tuesday. It can't come soon enough, I really hope that he can help me control these symptoms.
The other neurologist I saw didn't really want to do much for me. However he did order an MRI, which I had last week, and has helped me through the process of getting on a new medication. I'm going to be trying the only oral medication for MS on the market. I'm excited about that for sure. That means no more needles!! There are a lot of precautions to take with this medication though. I had to see a dermatologist and ophthalmologist. Hopefully everything works out and I can start on it soon.
Besides that I have been doing a little better emotionally. I'm not sure that the anti-depressants have really started working yet, but I think that my attitude has been a lot better. Maybe the nice weather we are having has something to do with it.
I've been trying to get out a little bit here and there. My gait is off and it takes a lot of energy for me to walk through a store. The dizziness doesn't help either. So because of this I have been thinking about using a cane here and there, when I go places I know I will be walking a lot.
I'm really torn about it though. I don't want people to look at me differently. I'm young and I don't look like someone who should need a cane. It's a really hard decision. I think that It would help with the fatigue I feel when I'm walking, I'm just not really sure that I'm ready to give into it. I mean how do you know when you are ready to use a cane? Beats me.
Don't let other people's perceptions influence you, do what YOU want and what you need. And -- you can find yourself a kick-ass cane! Find one that fits your personality, fun and sparkly :) Found a few links: http://www.clearcanes.com/colortwist.html
ReplyDeletehttp://www.walking-canes.net/mensoffsetinsolids-1-2-3.aspx
http://www.stylestick.com/specs.htm
Thanks Lisa! One of my good friends said she saw a pink sparkly cane, sounds like my style! I will check out the links!
ReplyDeleteHi Megan, as you grow wiser you’ll learn to take care of yourself first and to not even worry about what others think. I know this sounds selfish but your life is really all about you and your personal happiness. When you can reach this inner piece, you’ll have plenty of love, happiness and affection to share with all of those around you who don’t judge others. It’s sad, but people who judge others haven’t found peace with themselves so criticizing others makes them feel good about what they lack internally. Do what’s best for Megan and rock it out girl, it's your life not theirs...Peace!
ReplyDeleteI used a cane for a few years right after high school. I always bought sparkly garland and wrapped it around, it made it a little more fun and easier for me to deal with. I've been using crutches for about 5 years now, but I'm hoping to get back to just a cane someday. I'm glad to see they actually make pretty canes now!
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